
The dystonia is causing my arm muscle to flex uncontrollably, and is thereby flexing my index and middle finger uncontrollably. Hence, my inability to type, and the difficulty I have in writing for more than a couple words.
The first attempt to treat the dystonia was a few shots of xeomin, similar to Botox but purer and stronger, in an effort to weaken the muscle, thereby letting me type and control the fingers better. I had this injection in October, and my ring and middle fingers are still weak, though now I can at least lift and move them. Yes, the first injection rendered my fingers unusable, leaving me with a claw on the right hand. Not at all how I had hoped that would go.
The xeomin is mostly worn off now, but I still have marked weakness in those two fingers. Doctor says they'll be back to normal in another couple weeks. When my dystonia symptoms return though, I have a new oral medication to take for them. The medication may make it difficult for me to pee, give me dry mouth and one other thing I don't remember right now, so that's not good, but it's another option at least.
If that doesn't work, we can try, among other things, another injection at a weaker dose and in a different place. He was skeptical of my suggestion of acupuncture, because it won't help for more than a couple hours or days; and if I decide to try out some of Mom's CBD/THC muscle balm, he wants to know all about it so he can write a paper because there's not precedent for that.
At any rate, my fingers are still unfixed, but they're working just a little better now, and the experiments continue on how best to treat this stupid affliction.
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